Jesy Nelson Shares Emotional Update as Twin Babies Face Rare Diagnosis

Jesy Nelson, the former Little Mix singer, has shared heartbreaking news about her twin daughters, revealing they have been diagnosed with a rare genetic condition that could prevent them from ever walking. The emotional update was shared in a candid video message to fans, where Nelson spoke openly about the challenges her family is now facing.

Twin Daughters Diagnosed After Months of Concern

Nelson’s daughters, Ocean Jade and Story Monroe, were born prematurely in May 2025. In the months following their birth, doctors closely monitored the twins as they showed signs of developmental delays. What initially appeared to be complications related to prematurity later raised deeper concerns.

After extensive medical testing, the twins were diagnosed with Spinal Muscular Atrophy (SMA) Type 1, a rare neuromuscular disorder that affects muscle strength and movement. The condition can severely limit mobility and, in many cases, prevents children from walking independently.

What Is Spinal Muscular Atrophy Type 1?

SMA Type 1 is a genetic condition that causes progressive muscle weakness due to the loss of motor neurons. Children with this diagnosis often experience difficulty holding up their heads, moving their limbs, and breathing without assistance.

Doctors have explained to Nelson that her daughters may never gain full mobility or walk on their own. However, early treatment can help slow the progression of the disease and improve quality of life.

Jesy Nelson Opens Up About the Emotional Toll

In her message, Jesy Nelson described the diagnosis as devastating but emphasized her determination to stay strong for her children. She admitted the past several months have been the hardest period of her life, filled with hospital visits, uncertainty, and fear.

Despite the diagnosis, Nelson praised her daughters’ strength and resilience, calling them fighters and expressing hope that medical advances will continue to offer new possibilities.

Raising Awareness and Encouraging Early Detection

Nelson also used her platform to raise awareness about SMA, encouraging parents to trust their instincts if something feels wrong with their child’s development. Early diagnosis can be crucial in accessing life-changing treatments as soon as possible.

Since sharing her story, fans and fellow parents have flooded social media with messages of support, admiration, and encouragement.

Looking Ahead With Hope

While the future remains uncertain, Jesy Nelson has made it clear that she will continue advocating for her daughters and raising awareness about rare childhood conditions. Her openness has sparked important conversations about SMA and the realities faced by families navigating complex medical diagnoses.